Defining and Measuring Patient-Centred Care: An Example From a Mixed-Methods Systematic Review of the Stroke Literature
Health Expectations
Lawrence, M., & Kinn, S. (2012).
Health Expectations, 15(3), 295-326.
This systematic review investigates stroke-specific patient-centered outcome measures, patient-centered interventions, and family-centered interventions for adults, 18-years and older, post-stroke and/or their family members.
Chief Scientist Office (Scotland)
May 1994-January 2010
Any study design (excluding literature reviews, single-case studies, discussion/view point papers, guidelines, policy statements, or news items)
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One qualitative study examined a residential intervention for families living with aphasia. Key factors of this intervention included intensity, family member involvement, and "delivery by trained experts" (p. 319).
Results indicated communication impairments may be a barrier to patient-centered care. Involvement of patients in treatment decisions during early stroke recovery was reported as more difficult for healthcare providers when communication impairments were present. Review authors stated, particularly in aphasia, "effective communication methods need to be taught and implemented early in the rehabilitation process" (p. 322).
Three studies noted a lack of a patient-centered outcome measure for communication impairment after stroke. One of these studies examined psychometric properties of a communication-specific outcome measure, the Communication Outcome after Stroke scale (COAST).
