Canadian Consensus Position Statement for the Diagnosis and Management of MPS II
Raiman, J., Rupar, T., et al. (2018).
Vancouver (Canada): Canadian MPS Society for Mucopolysaccharide & Related Diseases, 1-20.
This is a consensus statement providing recommendations on the management of individuals with mucopolysaccharidosis type II (MPS II), also known as Hunter Syndrome.
Canadian MPS Society for Mucopolysaccharide & Related Diseases
Recommended management of feeding or swallow difficulties in individuals with Hunter Syndrome is as follows:
<ul>
<li>conservative management (e.g., feed thickening) or</li>
<li>gastrostomy insertion may be required.</li>
</ul>
For individuals with a risk of feeding or swallowing difficulties, it is recommended that a clinical assessment occur at each visit or a videofluoroscopic swallow study be conducted under the supervision of a speech-language pathologist.
