Psychosocial and Health-Related Experiences of Individuals With Microtia and Craniofacial Microsomia and Their Families: Narrative Review Over 2 Decades
This narrative review investigates the experiences of individuals with microtia and craniofacial microsomia and their care partners. This summary highlights conclusions within the scope of audiology.
National Institutes of Health
From January 2000 to July 2021
Peer-reviewed articles
64
Care partners of children with microtia preferred that healthcare providers discuss topics like hearing, development, psychological adjustment, treatment steps, medical specialties involved in care, and financial and medical information. They appreciated providers who used clear communication and patient-centered approaches and had positive attitudes. Adolescents wanted to be included in the decision-making process. Suggestions for improving care included timely referrals, use of amplification devices, increased knowledge of microtia and craniofacial microsomia, and better care coordination.
Care providers reported positive benefits of soft-band bone-conducted hearing devices and bone-conduction hearing aid implants in children with bilateral microtia.
