A Review of Measures Used in the Screening, Assessment and Diagnosis of Dementia in People With an Intellectual Disability

Journal of Applied Research in Intellectual Disabilities

McKenzie, K., Metcalfe, D., et al. (2018).

Journal of Applied Research in Intellectual Disabilities, 31(5), 725-742.

This systematic review investigates measures used as dementia screenings and assessments in individuals with intellectual disability. Although speech-language pathologists do not diagnose dementia, findings from this review may be useful for identifying tools for detection of cognitive impairments in this population.

Not stated



up to July 2017

Published studies of any design

81

Twenty-two dementia screening/assessment tools (12 cognitive and 10 behavioral) were identified, many of which were developed specifically for use with individuals with an intellectual disability (usually individuals with Down syndrome). Few had comprehensive information about both reliability and validity. Among measures of cognitive function, the Cognitive Scale for Down Syndrome and Prudhoe Cognitive Function Test had the strongest psychometric properties, while the American Association of Mental Deficiency Adaptive Behavior Scale 2 and Dementia Screening Questionnaire for Individuals with Intellectual Disabilities were most psychometrically sound for adaptive functioning. Further research into the psychometric properties of existing measures with an expanded population outside of Downs syndrome is warranted.