A Systematic Review of Patient and Caregiver Experiences With a Tracheostomy

The Patient: Patient-Centered Outcomes Research

Nakarada-Kordic, I., Patterson, N., et al. (2018).

The Patient: Patient-Centered Outcomes Research, 11(2), 175-191.

This systematic review investigates the experiences and quality of life of patients with tracheostomy and their caregivers.

Auckland University of Technology Strategic Research Investment Fund (New Zealand)



Up to April 2017

Published, peer-reviewed studies (not further specified)

17

<div>Patients indicated that regaining speech was a priority after tracheostomy. Patients reported that alternative methods of communication (e.g., writing, gestures, mouthing words) were frustrating or tiring. When patients were unable to effectively communicate after tracheostomy, they reported feelings of fear, anxiety, frustration, distress, powerlessness, and loss of control, including in the inability to communicate pain.</div>